Thursday morning, 1AM. I had a seizure.
The days after having a seizure are always rather depressing. I hide it well, but my brain is in turmoil. I’m confused and frustrated and pissed off. Eight years ago I was told that my seizures would likely stop on their own in my early 20s. I was starting to think that I would be confident getting my drivers license back. Be confident travelling on my own. Maybe someday not be dependent on my medication. Not be nervous about the difficulties Denis and I might experience when we try to start a family.
Half of my tongue is swollen and I sound like a moron when I talk. Yesterday my head hurt too much to do, well, anything. Seizures suck. I’m lucky to have someone who takes care of me and knows what to do when it happens.
Den commented once that he would be interested in experiencing a seizure so he could understand what it feels like for me. As much as I appreciate what he meant, I wouldn’t wish seizures on anyone. There’s not much to feel except really shitty afterwards.
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Wow, I like your honesty and openness. I hope for the best for you!
Oh sweetie.. I am so sorry. And I wish you the absolute best.
*love you big sis* xoxoxo
*Hugs*
That’s all.
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aw, Erica, this made me really sad. Hang in there. Enjoy tonight! You’re still going?
I’ve only had one seizure in my whole life. And it was horrible.
I don’t even want to know what is would be like to be in your shoes. *hugs*
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Thanks guys. The hugs and good wishes are greatly appreciated.
Allison, yes I’ll be there tonight. I wouldn’t miss Kent’s cooking and all of the lovely ladies!
You poor thing, I hope they end very soon! Hang in there!
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This is such a sad post that made me cry. I hope you feel better soon.
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Hi Erica. The seizures suck. I’m wishing you well and if there is anything I can do, please call. Love you.
I’m really sorry Erica
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Oh my gosh, I’m so sorry – I hope you feel back to normal soon!
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That sucks. All I can say is that you never know what the future holds. Having been feeling nearly pain-free for about 3 weeks after living 4.5 years in chronic pain, it feels like a miracle. I hope that you start to see some relief too, maybe when you’re least expecting it.
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Eri, thank you for pouring out your thoughts for us. I hope you’re feeling better now.
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Eria, feel your pain,literally. I also have epilepsy, petit mal seizures. I was diagnosed with epilepsy when I was 16 and am now 37. I have been “seizure free” for sometime now but will be on medication for the rest of my life. As you do get older the seizures become less frequent, at least in my experience. I haven’t had a “full” seizure in over ten years. So hang in there girl, hopefully with time your seizures will become less and less frequent!
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My 17 year old sister also has a seizure disorder. Started having seizures at 9 months old, and is 17 now. She’s been on anti seizure medication most of her life. She also struggles with developmental problems… she’s not on the same level as most of the other kids her age. She had a seizure yesterday afternoon… the first one in 4 months. it is really sad for her when it happens because she never remembers how she felt before it happened, and sometimes when she comes out of it she doesn’t recognize us. It’s a hard thing to go through for her and our family- so I know it’s hard for you too. I’ll be praying for you and I hope someday you, and my sister as well, can be seizure free and live normal lives!
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